Financial Assistance

The National Pancreas Foundation does not provide routine medical assistance or funds for treatment.

Health insurance usually pays at least part of your medical costs. If you do not have insurance or need help with costs that aren’t covered, financial assistance might be available. Visit the websites below for new information as it becomes available. Talk to your state or county health department or social workers at your local hospital for more information on available resources.

For cancer patients, we recommend that you visit Cancer.Net, which is supported by the American Society of Clinical Oncology (ASCO) and the Conquer Cancer Foundation. The link to their financial resources page is here: http://www.cancer.net/navigating-cancer-care/financial-considerations/financial-resources

Information on Health Insurance

Health insurance helps protect you from high medical care costs. It is a contract between you and your insurance company. You buy a plan or policy, and the company agrees to pay part of your expenses when you need medical care.

Many people in the United States get a health insurance policy through their employers. In most cases, the employer helps pay for that insurance. Insurance through employers is often with a managed care plan. These plans contract with health care providers and medical facilities to provide care for members at reduced costs. You can also purchase health insurance on your own.

People who meet certain requirements can qualify for government health insurance, such as Medicare and Medicaid. The Affordable Care Act expands health insurance coverage for many people in the U.S.

Helpful Links:

Assistance with Paying for Medical Care and Procedures

Department of Health and Human Services (DHHS) [hhs.gov] The Department of Health and Human Services (DHHS) has information on assistance in paying for medical care for low-income families. Go to “Families & Children.”

The U.S. Department of Health and Human Services
200 Independence Avenue, S.W.
Washington, D.C. 20201
Telephone: 202-619-0257
Toll-free: 1-877-696-6775

Government Benefits [benefits.gov] The official government benefits website. This is a free, confidential tool that locates government benefits.

Health Resources and Services Administration [mchb.hrsa.gov] The Health Resources and Services Administration (HRSA) of the DHHS website, Maternal and Child Health Bureau (MCHB), whose goal is to ensure equal access to quality health care in a supportive, culturally competent family and community setting.

Maternal and Child Health Bureau (MCHB)
Rockville, MD 20857
Phone: 301-443-2170
Fax: 301-443-1797
E-mail: ctibbs@hrsa.gov

Insure Kids Now [insurekidsnow.gov] The Insure Kids Now website is a resource where you can find free or low cost health insurance for children and teens.

Find A Health Center [findahealthcenter.hrsa.gov] You can find federally funded free or low cost medical and dental care by using the HRSA Find A Health Center tool.

Hill-Burton Facilities [hrsa.gov] Hill-Burton facilities provide care to uninsured Americans. To locate a Hill-Burton facility in your area call 900-638-0742.

Financial Aid for Medical Treatments

Financial assistance program for the test Pancragen  (a predictor of benign and malignant disease in patients with pancreatic cysts): http://interpacediagnostics.com/financial-options.php.

Information on financial aid for medical treatments can also be obtained from the following patient advocacy organizations:

Organization/E-mail Address Phone/ Fax
National Patient Advocate Foundation
[npaf.org] E-mail: action@npaf.org
725 15th St. NW, Tenth Floor
Washington DC, 20005
Phone: 202-347-8009
Fax: 202-347-5579
Association of Maternal and Child Health Programs
(AMCHP) [amchp.org] E-mail: info@amchp.org
230 M Street, NW
Suite 350
Washington, DC 20036
Phone: 202-775-0436
Fax: 202-775-0061
Patient Advocate Foundation
[patientadvocate.org] E-mail: help@patientadvocate.org
700 Thimble Shoals Boulevard
Suite 200
Newport News, VA 23606
Phone: 800-532-5274
Fax: 757-873-8999

Family Voices offers resources and communication opportunities on the Internet for people with cognitive and other disabilities, for their families, and for those who provide services and support. This resource has a special interest in the care of children. Resources state by state.

Family Voices [familyvoices.org] 2340 Alamo SE, Suite 102
Albuquerque, NM 87106
Toll-free: 888-835-5669
Phone: 505-872-4774
Fax: 505-872-4780
Online E-mail Contact Form: http://www.familyvoices.org/contact

Resources state by state [familyvoices.org] Note: Special interest in children

Your child may be eligible to receive social security. To find out if your child qualifies a publication from the Social Security Administration (SSI) [ssa.gov] outlines who may qualify, and how to get this money. It also provides links to the Children’s Health Insurance Program (CHIP) in each state.

Assistance with Paying for Medications

The Partnership for Prescription Assistance [pparx.org] The Partnership for Prescription Assistance helps match patients who cannot afford medication to prescription assistance programs that provide free or nearly free medicines to eligible patients.

National Organization for Rare Disorders [rarediseases.org] The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit, voluntary health organizations serving people with rare disorders. The NORD website includes information on medication assistance programs and networking programs, a resource guide and links to other online resources.

NORD’s Medication Assistance Programs
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Toll-free: 800-999-6673 (voicemail only)
Phone: 203-744-0100
TDD: 203-797-9590
Fax: 203-798-2291
E-mail: orphan@rarediseases.org

Enzyme Assistance Programs
CREON® capsules – http://www.abbviepaf.org/pdf/AbbVie_PAF_Creon.pdf
Pancreaze® capsules – http://www.janssenprescriptionassistance.com/pancreaze-cost-assistance
Pertzye® capsules- https://www.pertzyecf.com/savings-support/
Zenpep® capsules – https://www.zenpep.com/HCP/patient_support_programs.aspx 

Assistance with Insurance

Get Help With Co-Pays

Do you or someone you love need help paying co-payments for chemotherapy and cancer medications? The CancerCare® Co-Payment Assistance Foundation (CCAF) is dedicated to helping people afford their co-payments for chemotherapy and targeted treatment medications.

They currently have funds available for these diagnoses:

  • Metastatic breast cancer
  • Non-small cell lung cancer (NSCLC)
  • Colorectal cancer
  • Pancreatic cancer 
  • Glioblastoma
  • Gastric cancer 
  • Multiple myeloma

Visit the website or call 866-55-COPAY (866-552-6729) to learn more or to enroll.

Georgetown University Health Policy Institute [healthinsuranceinfo.net] The Georgetown University Health Policy Institute has written a consumer guide for getting and keeping health insurance for each state and the District of Columbia. These consumer guides are available on the institute’s website and are updated periodically as changes in Federal and state policy warrant.

Health Care Choices provides information to the public on selecting and using various types of health insurance and managed care plans.

Health Care Choices
P.O. Box 21039
Columbus Circle Station
New York, NY 10023
Toll-free: 800-368-5779

TheDesk.info [thedesk.info] TheDesk.info is the first online Medicaid reference desk created by advocates and consumers. Medicaid is the largest source of funding for people with disabilities and those who provide their care. Medicaid is often the only source of financial assistance for health care, but it can be very complicated. This site provides an online “road map” to critical consumer information on government-funded health services.

Centers for Medicare and Medicaid Services [cms.gov] The website from the Centers for Medicare and Medicaid Services may provide information on qualifying for federal or state assistance for medical treatment.

Kaiser Health News [kaiserhealthnews.org/] A nonprofit news organization committed to in-depth coverage of health care policy and politics.

Medicaid Waivers

Medicaid waivers are state-run programs that use federal and state funds to pay for health care for people with certain health conditions. In some states, families can apply for a medicaid waiver that waives the family income and looks only at the disabled person’s income. This allows people who would otherwise be ineligible for Medicaid to receive medical care. Most states have some type of Medicaid waiver program. To find out more about Medicaid waiver programs in general, as well as specific state programs, visit:

Family Voices [familyvoices.org] Medicaid Waivers [cms.gov]

Medicare [medicare.gov] The official U.S. government website for people with Medicare offers information specific to Medicare, including eligibility guidelines and enrollment for Medicare coverage.

Assistance with Treatment-Related Travel and Lodging

PALS – Patient Airlift Services. It provides free flights to ambulatory children and an adult escort to families with a demonstrated financial need to medical facilities greater than a 2 hour drive from their homes. You can check out their website at  www.palservices.org

YMCA or YWCA – Check local phone directories for area listings. Many offer low rates for overnight accommodations.

Your Treatment Facility – Many hospitals negotiate discount rates at local hotels or short-term rental units, and some may also offer dormitory-type lodging. Check with the social worker at your treatment facility for a referral.

The Healthcare Hospitality Network, Inc.(HHN) –  HHN is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities.http://www.hhnetwork.org/about-us/

Chronic Disease Fund – assists patients throughout the United States who meet income qualification guidelines and have private insurance or a Medicare Part D plan but cannot afford the cost of their specialty therapeutics. Chronic Disease Fund currently supports patients with more than two dozen different diseases, including many types of cancer, multiple sclerosis, asthma, and macular degeneration, to name a few. http://www.cdfund.org/

Hospitality Homes – provide free short-term housing in volunteer host homes and donated apartments for families and friends of patients seeking care at Boston-area healthcare organizations. http://hosp.org

Important Disclaimer

The materials provided are for informational or educational purposes only and are not intended as a substitute for professional medical care, advice, diagnosis, or treatment. This material does not represent an endorsement of any specific tests and products by The National Pancreas Foundation. We cannot guarantee the accuracy, completeness, timeliness, or usefulness of the opinions, advice, services, or other information provided. Moreover, we strongly recommend that you seek the advice of your health care provider with any questions regarding your medical care.