Success Stories

A Cross-country Victory Ride…and Spreading Awareness Along the Way

Categories: Success Stories
My husband Anthony Guido, was diagnosed with pancreatic adenocarcinoma, 17 months ago at stage III, where doctors found a mass in the head of his pancreas. Through his treatment he’s had 12 rounds of Folfirinox under the care of wonderful doctors and nurses at Dana-Farber (Boston) from June thru December of 2016, and had a …

Read More

Brotherly Love In a Race to Find a Cure

Categories: Success Stories
My name is Anthony and I am the brother of someone who suffers from chronic pancreatitis. After his first hospital visit in 2003, my brother Allan continued to suffer from chronic pancreatitis attacks throughout his years at university, which extended his time in school a couple years longer than planned. After moving to San Diego …

Read More

My Journey to Find Hope with Familial Chylomicronemia Syndrome

Categories: Success Stories
FCS occurs in about 1 in 1 million people and the disorder causes the body to not be able to break down certain fats correctly. This disease frequently leads to symptoms such as pancreatitis — a very serious condition that causes inflammation of the pancreas and can lead to death – and fatty deposits in …

Read More

Kimberly’s Story of Courage

Categories: Success Stories
THE “ANGRY ORGAN” An attack of Acute Necrotizing Pancreatitis due to Hypertriglyceridemia (Type I Hyperlipoproteinemia or Chylomicronemia) In Honor of Dr. Singh, Dr. Mackary, Dr. Law, Christi Welsh, at Johns Hopkins University Hospital and Dr. Seoudi, Dr. Griffin, Dr. Machetti and the entire Trauma team at Inova Fairfax Hospital and each and every nurse that …

Read More

Ashlynn’s Story of Courage

Categories: Success Stories
When I was 8 years old all of the doctors thought I had a “flu” or “strep throat”. Then when I was 10, we decided to go to a different doctor and they diagnosed me with chronic pancreatitis. This whole concept changed my life when they doctors told me I was not able to play …

Read More