March Education: How to Improve Communication With Health Care Providers

Home2023-03-06T16:12:02-05:00
Official Healthy People 2030 Champions web badge

Enough
Small Talk

LET’S PUT AN END TO PANCREAS DISEASE

Enough
Small Talk

LET’S PUT AN END TO PANCREAS DISEASE

Centers of Excellence

Find A Center Near You

Patient
Registry

Manage Your Health Information Online

NPF
Chapters

Find A Chapter Near You

Mission

The National Pancreas Foundation provides hope for those suffering from pancreatitis, pancreatic cancer, and FCS through funding cutting edge research, advocating for new and better therapies, and providing support and education for patients, caregivers, and health care professionals.

Patient Stories

Our Impact

$5 Million

Awarded over 5 million
in grants

$0

$.93 of every dollar raised
supports NPF programs

0

Endorses over 160
Centers of Excellence

0

Over 30 programs for
patients and physicians

What Is The Pancreas?

The pancreas is an organ and a gland. Glands are organs that produce and release substances into the body. The pancreas contains glands that release substances to help with digestion and control blood sugar. Type 1 and Type 2 diabetes are common pancreatic conditions. Other pancreas conditions include pancreatitis and pancreatic cancer.

Physician Programs

Upcoming Events

Initiatives

Black/African American Guide to Pancreas Disease

Many studies suggest that environmental and socioeconomic factors have contributed to the increased risk of pancreas disease among African Americans. NPF’s Black/African American Initiative will address these issues with the hope of decreasing the incidence of pancreas disease in the Black/African American community.

Cookbook & Pocket Guide

The NPF Healthy Family Recipes for Pancreas Disease includes recipes for pancreatitis patients (chronic and pediatrics) as well as pancreatic cancer. There is even a kid-friendly section. Available to purchase or download a free e-flip version. It is complemented by our Eat Healthy, Live Better pocket guide.

Camp Hope

The National Pancreas Foundation and Rebecca’s Wish created Camp Hope, so children and young people suffering from pancreatitis, or post-TPIAT, can experience all the joys of camp without limitations. Camp Hope is a place where they can meet to bond/build friendships in a fun and medically safe environment.

Ways To Get Involved

Join a chapter

Volunteers fuel awareness of pancreatic diseases while helping promote events and expand patient, public, and professional education.

Help make a difference

Share your story

Sharing your personal or caregiver experience with pancreas disease helps create awareness while supporting and advocating for others.

Inspire others with your story

Fundraise

Help us fund vital pancreatic research programs by hosting an event such as golf, run, gala, sporting event or even a bake sale.
Every dollar counts!

Start your fundraising event

Legacy giving

Giving in memory can help fund groundbreaking pancreatic research programs while honoring the memory of your loved one.

Give in memory of a loved one

Birthday giving

Celebrate your birthday and help our fight against pancreas disease by creating a Facebook birthday campaign in 6 simple steps.

Create a birthday campaign

Get social with us

Help NPF spread the word by following our social media, commenting, and sharing. Together we can expand awareness!

Help us spread the word

Find a Center of Excellence Near You

Finding a Center is easy. Enter your address or pin your location, choose the center type and radius. If there is a Center of Excellence it will show on the map.

Alternatively, click one of the following buttons to see a list of pancreatitis or pancreatic cancer centers by state.

Loading...
OPEN
ALL

Center Direction

Get Your Directions

Use my location to find the closest Service Provider near me

Connect With Us

"Having my makeup done and wearing nice clothing doesn't automatically make someone healthy."
- Kristen Curtis

#invisibleillness #npf #nationalpancreasfoundation #pancreasdisease #pancreasquote

Download our free cookbook for pancreas disease.
National Pancreas Foundation offers a free cookbook, Healthy Family Recipes for Pancreas Disease. The cookbook includes recipes for pancreatitis patients as well as pancreatic cancer. There is even a section for kid-friendly meals so children can... get involved.

#nationalpancreasfoundation #EatHealthy #ebook #healthyliving #healthyfamilyrecipes

CONSOLIDATE YOUR MEDICAL RECORDS WITH OUR PATIENT REGISTRY

Imagine the ease, and amount of precious time saved by having all your health information in one convenient, private, and secure cloud-based platform.

NPF’s patient registry is the first Patient Registry impacting all ...forms of Pancreas Disease, including Pancreatic Cancer, Pancreatitis, Pediatric Pancreatitis, and Familial Chylomicronemia Syndrome.

Join in 3 simple steps!

REGISTRY FEATURES:

Easily retrieve your health information in a secure, central location

Link to participating U.S.-based patient portals and add health records from multiple providers to your profile

Create patient-directed printable health cards to easily share your medical information with healthcare providers, family, and caregivers

Synch data from your fitness and health tracking devices - View and track your real-time health data over time

Integrates your information from most consumer DNA sequencing providers (e.g., 23andme)

Consolidates your lab results & medication information - Streamline and organize your personal and family health information

Keep updated on clinical trials Participate in surveys to help researchers uncover insights

REGISTER TODAY: https://pancreasfoundation.org/npfregistry/

The NPF Patient Registry is sponsored by an educational grant from AbbVie

Please LIKE and SHARE our new resource.

#pancreasdisease #pancreaticcancer #pancreatitis #chronicdisease #illness #nationalpancreasfoundation #hope #survivor #npf #patientsupport #patients #caregivers #medicalapp #PancreasPatientRegistry #NationalPancreasFoundation #NPF #Seqster #Abbvie

WHAT YOU NEED TO KNOW ABOUT PANCREATIC CYSTS

Anne Marie Lennon, assistant professor of medicine and director of the Multidisciplinary Pancreatic Cyst Program, discusses the prevalence, types, and best approaches to managing pancreatic cysts.

What is a pancreatic cyst?

Why... are more people now being diagnosed with pancreatic cysts?

What are the different types of pancreatic cysts and which ones potentially cause cancer?

What tests will determine the type of pancreatic cyst I may have?

Will I need to have surgery for my pancreatic cysts?

If I have been diagnosed with pancreatic cysts, what type of specialist should I see.?

Source: The Multidisciplinary Pancreatic Cysts Program at John Hopkins

https://clinicalconnection.hopkinsmedicine.org/videos/what-you-need-to-know-about-pancreatic-cysts

#pancreaticcyst #pancreasdisease #pancreaticcancer #pancreatitis #nationalpancreasfoundaiton #NPF #pancreaticcysts #JohnHopkins

https://clinicalconnection.hopkinsmedicine.org/videos/what-you-need-to-know-about-pancreatic-cysts

Image for shared link
What You Need to Know About Pancreatic Cysts - Johns Hopkins Medicine

Anne Marie Lennon, assistant professor of medicine and director of the Multidisciplinary Pancreatic Cyst Program, discusses the prevalence, types and...

clinicalconnection.hopkinsmedicine.org

March Education Webinar
How to Improve Communication with Health Care Providers

When: March 22, 2023 | Time: 7:00 PM (EST)

Register Here:
https://us06web.zoom.us/webinar/register/WN_OqfJkKMLS923uU3eJuJRXQ

There are a number of causes of pancreatic disease. Often ...patients are accused of alcohol abuse because of an impression that alcohol is the only cause. In addition, pancreatic diseases cause much pain and suffering with the need of pain relief. Sometimes tests for pancreatitis are not definitive resulting in patients being accused of drug seeking behavior.

The National Pancreas Foundation has assembled a group of experts to explore these issues and provide suggestions on how to deal with acquaintances and medical staff to improve understanding. In this webinar, we will learn ways to:
• Teach about the causes of pancreatitis and approaches to determine the cause.
• Provide approaches to inform medical professionals about causes and treatments.
• Give suggestions about how to discuss causes of pancreatitis and needs with family and acquaintances.
• Discuss integrative medicine approaches such as nutrition, lifestyle modifications, yoga, massage, and acupuncture.
• Hear more about NPF’s Patient Registry Program

Join us for this free, 75-minute webinar where we will:

• Gain knowledge from experts on causes and treatments for pancreatitis.

• Hear firsthand from a patient on managing the impact of pancreatitis flares.

Speakers:

Stephen J. Pandol, MD
Director, Gastroenterology Training Program
Director, Basic and Translational Pancreas Research
Karsh Division of Gastroenterology and Hepatology
Professor of Medicine, Cedars-Sinai Medical Center and David Geffen School of Medicine at UCLA

Srinivas Gaddam, MD MPH
Associate Director of Endoscopic Research
Associate Clinical Professor of Medicine
Karsh Division of Gastroenterology and Hepatology
Cedars- Sinai

Jane Holt
NPF Co-Founder

#NationalPancreasFoundation #NPF #education #learning #community #knowledge #pancreasdisease #pancreashealth #pancreaticcancer #pancreatitis #FCS #awareness #Caregiver

🎉 WE HAVE LAUNCHED THE NEW NPF WEBSITE!🎉
Our NEW National Pancreas Foundation website is an easy-to-navigate platform with tons of amazing resources for both patients and physicians.

FEATURES INCLUDE:
Pancreas Disease: Detailed information on the various forms of pancreas ...disease including videos and downloads.

Patient Resources: Find all of our programs and initiatives in one location, including patient stories, newsletters, and patient programs.

Centers of Excellence: Our map feature allows you to find a premiere health care center located near you. Search by zip, location, or by center type.

Physician Programs: Learn about all of the NPF programs available including to physicians and how to become a Center of Excellence, apply for grants, or join our Fellows Symposium.

Ways to Give: We have found a few new ways for you to be able to give back to NPF.

How to Get Involved: Help us make a difference in our fight to end pancreas disease by joining a Chapter or sharing your story.

Center of Excellence Map feature: Find a COE in your area by address or category.
Event Calendar: Find out about all of our events including education in one calendar.

Newsletter Library: View our newsletters for the past

Get Social With Us: Great social media feature to like and share all of our platforms from one location.

Please help us spread the word! https://pancreasfoundation.org/

#nationalpancreasfoundation #NPF #Pancreasdisease #Pancreatitis #PancreaticCancer #FCS #Awareness

The TNM system uses 3 factors to determine the stage of pancreatic cancer.
T: Size and location of tumor
N: Has it spread to nearby lymph nodes
M: Has it metastasized to other sites in the body

By @NatPancFdn Center of Excellence, @UCCancerCenter

Read: ...https://www.uchicagomedicine.org/cancer/types-treatments/pancreatic-cancer/diagnosis

We thank you for your support as we provide hope and resources for those suffering from pancreatic diseases.

Go to Top