Enough
Small Talk
LET’S PUT AN END TO PANCREAS DISEASE
Enough
Small Talk
LET’S PUT AN END TO PANCREAS DISEASE
Patient Stories
Brittney’s Story
My story began on April 1, 2022, I had [...]
Sakshi’s Story
How old were you when you first had your [...]
Rachel’s Story
I’ve had stomach issues for as long as I [...]
Sarah’s Story
How old were you when you first had your [...]
Our Impact
$5 Million
Awarded over 5 million
in grants
$.93 of every dollar raised
supports NPF programs
Endorses over 160
Centers of Excellence
Over 30 programs for
patients and physicians
What Is The Pancreas?
The pancreas is an organ and a gland. Glands are organs that produce and release substances into the body. The pancreas contains glands that release substances to help with digestion and control blood sugar. Type 1 and Type 2 diabetes are common pancreatic conditions. Other pancreas conditions include pancreatitis and pancreatic cancer.
Physician Programs
Upcoming Events
Initiatives
Black/African American Guide to Pancreas Disease
Cookbook & Pocket Guide
The NPF Healthy Family Recipes for Pancreas Disease includes recipes for pancreatitis patients (chronic and pediatrics) as well as pancreatic cancer. There is even a kid-friendly section. Available to purchase or download a free e-flip version. It is complemented by our Eat Healthy, Live Better pocket guide.
Camp Hope
Ways To Get Involved
Join a chapter
Volunteers fuel awareness of pancreatic diseases while helping promote events and expand patient, public, and professional education.
Share your story
Sharing your personal or caregiver experience with pancreas disease helps create awareness while supporting and advocating for others.
Fundraise
Help us fund vital pancreatic research programs by hosting an event such as golf, run, gala, sporting event or even a bake sale.
Every dollar counts!
Legacy giving
Giving in memory can help fund groundbreaking pancreatic research programs while honoring the memory of your loved one.
Birthday giving
Celebrate your birthday and help our fight against pancreas disease by creating a Facebook birthday campaign in 6 simple steps.
Get social with us
Help NPF spread the word by following our social media, commenting, and sharing. Together we can expand awareness!
Find a Center of Excellence Near You
Finding a Center is easy. Enter your address or pin your location, choose the center type and radius. If there is a Center of Excellence it will show on the map.
Alternatively, click one of the following buttons to see a list of pancreatitis or pancreatic cancer centers by state.
Connect With Us
"Having my makeup done and wearing nice clothing doesn't automatically make someone healthy."
- Kristen Curtis
#invisibleillness #npf #nationalpancreasfoundation #pancreasdisease #pancreasquote
Download our free cookbook for pancreas disease.
National Pancreas Foundation offers a free cookbook, Healthy Family Recipes for Pancreas Disease. The cookbook includes recipes for pancreatitis patients as well as pancreatic cancer. There is even a section for kid-friendly meals so children can... get involved.
#nationalpancreasfoundation #EatHealthy #ebook #healthyliving #healthyfamilyrecipes
CONSOLIDATE YOUR MEDICAL RECORDS WITH OUR PATIENT REGISTRY
Imagine the ease, and amount of precious time saved by having all your health information in one convenient, private, and secure cloud-based platform.
NPF’s patient registry is the first Patient Registry impacting all ...forms of Pancreas Disease, including Pancreatic Cancer, Pancreatitis, Pediatric Pancreatitis, and Familial Chylomicronemia Syndrome.
Join in 3 simple steps!
REGISTRY FEATURES:
Easily retrieve your health information in a secure, central location
Link to participating U.S.-based patient portals and add health records from multiple providers to your profile
Create patient-directed printable health cards to easily share your medical information with healthcare providers, family, and caregivers
Synch data from your fitness and health tracking devices - View and track your real-time health data over time
Integrates your information from most consumer DNA sequencing providers (e.g., 23andme)
Consolidates your lab results & medication information - Streamline and organize your personal and family health information
Keep updated on clinical trials Participate in surveys to help researchers uncover insights
REGISTER TODAY: https://pancreasfoundation.org/npfregistry/
The NPF Patient Registry is sponsored by an educational grant from AbbVie
Please LIKE and SHARE our new resource.
#pancreasdisease #pancreaticcancer #pancreatitis #chronicdisease #illness #nationalpancreasfoundation #hope #survivor #npf #patientsupport #patients #caregivers #medicalapp #PancreasPatientRegistry #NationalPancreasFoundation #NPF #Seqster #Abbvie
WHAT YOU NEED TO KNOW ABOUT PANCREATIC CYSTS
Anne Marie Lennon, assistant professor of medicine and director of the Multidisciplinary Pancreatic Cyst Program, discusses the prevalence, types, and best approaches to managing pancreatic cysts.
What is a pancreatic cyst?
Why... are more people now being diagnosed with pancreatic cysts?
What are the different types of pancreatic cysts and which ones potentially cause cancer?
What tests will determine the type of pancreatic cyst I may have?
Will I need to have surgery for my pancreatic cysts?
If I have been diagnosed with pancreatic cysts, what type of specialist should I see.?
Source: The Multidisciplinary Pancreatic Cysts Program at John Hopkins
https://clinicalconnection.hopkinsmedicine.org/videos/what-you-need-to-know-about-pancreatic-cysts
#pancreaticcyst #pancreasdisease #pancreaticcancer #pancreatitis #nationalpancreasfoundaiton #NPF #pancreaticcysts #JohnHopkins
https://clinicalconnection.hopkinsmedicine.org/videos/what-you-need-to-know-about-pancreatic-cysts
Anne Marie Lennon, assistant professor of medicine and director of the Multidisciplinary Pancreatic Cyst Program, discusses the prevalence, types and...
clinicalconnection.hopkinsmedicine.orgMarch Education Webinar
How to Improve Communication with Health Care Providers
When: March 22, 2023 | Time: 7:00 PM (EST)
Register Here:
https://us06web.zoom.us/webinar/register/WN_OqfJkKMLS923uU3eJuJRXQ
There are a number of causes of pancreatic disease. Often ...patients are accused of alcohol abuse because of an impression that alcohol is the only cause. In addition, pancreatic diseases cause much pain and suffering with the need of pain relief. Sometimes tests for pancreatitis are not definitive resulting in patients being accused of drug seeking behavior.
The National Pancreas Foundation has assembled a group of experts to explore these issues and provide suggestions on how to deal with acquaintances and medical staff to improve understanding. In this webinar, we will learn ways to:
• Teach about the causes of pancreatitis and approaches to determine the cause.
• Provide approaches to inform medical professionals about causes and treatments.
• Give suggestions about how to discuss causes of pancreatitis and needs with family and acquaintances.
• Discuss integrative medicine approaches such as nutrition, lifestyle modifications, yoga, massage, and acupuncture.
• Hear more about NPF’s Patient Registry Program
Join us for this free, 75-minute webinar where we will:
• Gain knowledge from experts on causes and treatments for pancreatitis.
• Hear firsthand from a patient on managing the impact of pancreatitis flares.
Speakers:
Stephen J. Pandol, MD
Director, Gastroenterology Training Program
Director, Basic and Translational Pancreas Research
Karsh Division of Gastroenterology and Hepatology
Professor of Medicine, Cedars-Sinai Medical Center and David Geffen School of Medicine at UCLA
Srinivas Gaddam, MD MPH
Associate Director of Endoscopic Research
Associate Clinical Professor of Medicine
Karsh Division of Gastroenterology and Hepatology
Cedars- Sinai
Jane Holt
NPF Co-Founder
#NationalPancreasFoundation #NPF #education #learning #community #knowledge #pancreasdisease #pancreashealth #pancreaticcancer #pancreatitis #FCS #awareness #Caregiver
🎉 WE HAVE LAUNCHED THE NEW NPF WEBSITE!🎉
Our NEW National Pancreas Foundation website is an easy-to-navigate platform with tons of amazing resources for both patients and physicians.
FEATURES INCLUDE:
Pancreas Disease: Detailed information on the various forms of pancreas ...disease including videos and downloads.
Patient Resources: Find all of our programs and initiatives in one location, including patient stories, newsletters, and patient programs.
Centers of Excellence: Our map feature allows you to find a premiere health care center located near you. Search by zip, location, or by center type.
Physician Programs: Learn about all of the NPF programs available including to physicians and how to become a Center of Excellence, apply for grants, or join our Fellows Symposium.
Ways to Give: We have found a few new ways for you to be able to give back to NPF.
How to Get Involved: Help us make a difference in our fight to end pancreas disease by joining a Chapter or sharing your story.
Center of Excellence Map feature: Find a COE in your area by address or category.
Event Calendar: Find out about all of our events including education in one calendar.
Newsletter Library: View our newsletters for the past
Get Social With Us: Great social media feature to like and share all of our platforms from one location.
Please help us spread the word! https://pancreasfoundation.org/
#nationalpancreasfoundation #NPF #Pancreasdisease #Pancreatitis #PancreaticCancer #FCS #Awareness
Read @ntpancfdn patient story on Sakshi and her journey with EPI.
READ:
#EPI #pancreasdisease
How old were you when you first had your first bout of EPI? I was about 11.5- 12 years old when I had EPI symptoms, but I was diagnosed at the...
pancreasfoundation.orgThe TNM system uses 3 factors to determine the stage of pancreatic cancer.
T: Size and location of tumor
N: Has it spread to nearby lymph nodes
M: Has it metastasized to other sites in the body
By @NatPancFdn Center of Excellence, @UCCancerCenter
Read: ...https://www.uchicagomedicine.org/cancer/types-treatments/pancreatic-cancer/diagnosis
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