NPF Advocacy Volunteers Needed!

Categories: Events, NPF News

Dear NPF Supporter:

Each year the National Pancreas Foundation (NPF) participates in an annual advocacy process with the Digestive Disease National Coalition.  The Digestive Disease National Coalition (DDNC) is an advocacy organization comprised of the major national voluntary and professional societies concerned with digestive diseases. The DDNC focuses on improving public policy and increasing public awareness with respect to diseases of the digestive system.

From Thursday, March 4 through Tuesday, March 9, the Digestive Disease National Coalition (DDNC) will host its 31st Annual Public Policy Forum. The Forum’s theme is “Overcoming Patient Access Limitations in the Cost-Shifting Era” and will feature the DDNC’s new policy document on Patient Access to Care and Treatments in the Cost-Shifting Era. The forum will begin with an informative webinar on legislative issues on Thursday and continues Sunday when participants will watch informative panel presentations from government officials and industry leaders, and learn important information on current key legislative issues for the digestive disease community. On Monday and Tuesday, participants will “virtually” meet with their congressional offices to advocate for top priority legislative items, including bills like the Safe Step Act.

NPF will participate in this Public Policy Forum with other nonprofits involved with the DDNC.  NPF volunteers will attend a virtual training prior to our Public Policy Forum to discuss roles and key talking points.

Individuals interested in participating in the Public Policy Forum can register for the event by emailing David Bakelman:  David@pancreasfoundation.org.  Please include your name, city, state, and phone number.

The registration deadline is Friday, February 19th.

We look forward to advocating for patients, family, and research affecting those with pancreas disease!