Bella’s Story

Bella’s Mission to Help Kids Like Her   Most every kid deals with a fear of monsters at some point. Monsters under the bed or in the closet. Monsters in movies or books that later make a special guest appearance in our dreams.  As a carefree 12-year-old, Bella was almost a teenager—old enough to know that… Read More »Bella’s Story

Jenny’s Story

Mental Health and Pancreas DiseaseBy Jenny Jones, Pancreatitis Patient Advocate I started getting sick with pancreatitis when I was in third grade, 9 years old.  This disease impacted me physically and mentally.  I was in excruciating pain, unable to gain weight, feeling alone, misunderstood, and very different.  As a result, I became anxious and depressed.  As a … Read More »Jenny’s Story

Edmund’s Story

My pancreatitis journey began in 2017; although at first – I didn’t know it was pancreatitis. It began with a stabbing pain that shot through my back. Since I’ve had four back surgeries, I thought the pain could be orthopedic in nature. I saw my orthopedist and began by getting lumbar shots, acupuncture and physical… Read More »Edmund’s Story

Dean’s Story

Ever since I can remember I’ve not felt well and often this feeling was accompanied by severe pain and recurring hospital visits. For most of my youth, I spent about several weeks of every year missing school or being in the hospital.  Most of the time in horrible pain that made me wish someone could… Read More »Dean’s Story

Meaghan’s Story

My name is Meaghan.  I live in Philadelphia with my husband Steve and my son Teddy. My journey with pancreatitis began in 1993 when I was 8 years old and hospitalized at the Children’s Hospital of Philadelphia (CHOP) for acute pancreatitis.  Just a few months before that, my older sister had her first attack of… Read More »Meaghan’s Story

A scientific advance makes an operation obsolete – The story of Betty

A dream of science is to discover medicines which make surgical operations unnecessary. Drugs which reverse genetic defects or medicines which cure malignancy have evolved from science fiction to reality for many diseases. But not so for most pancreatic diseases. There is still no approved drug to treat pancreatitis, and the search for drugs or… Read More »A scientific advance makes an operation obsolete – The story of Betty

Lee’s Story

My name is Lee Zeidman. I am a Strategic Communications Consultant and pancreatic cancer survivor. I’m a native Washingtonian. I was part of the team that launched CNN in 1980. I also was a local sportscaster early in my career in Washington, D.C. and New York City. What were your symptoms of pancreatic cancer? What… Read More »Lee’s Story

The National Pancreas Foundation Partners with Seqster to Launch a New Dynamic Patient Registry System

The National Pancreas Foundation Partners with Seqster to Launch a New Dynamic Patient Registry System   The Registry will lead to a deeper understanding of novel therapies and predictive biomarkers that will significantly impact patient lives at scale.   SAN DIEGO, Jan 11, 2022  — Seqster PDM, Inc. (“Seqster“), the leading patient-centric healthcare technology company,… Read More »The National Pancreas Foundation Partners with Seqster to Launch a New Dynamic Patient Registry System