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A scientific advance makes an operation obsolete – The story of Betty

A dream of science is to discover medicines which make surgical operations unnecessary. Drugs which reverse genetic defects or medicines which cure malignancy have evolved from science fiction to reality for many diseases. But not so for most pancreatic diseases. There is still no approved drug to treat pancreatitis, and the search for drugs or… Read More »A scientific advance makes an operation obsolete – The story of Betty

Lee’s Story

My name is Lee Zeidman. I am a Strategic Communications Consultant and pancreatic cancer survivor. I’m a native Washingtonian. I was part of the team that launched CNN in 1980. I also was a local sportscaster early in my career in Washington, D.C. and New York City. What were your symptoms of pancreatic cancer? What… Read More »Lee’s Story

The National Pancreas Foundation Partners with Seqster to Launch a New Dynamic Patient Registry System

The National Pancreas Foundation Partners with Seqster to Launch a New Dynamic Patient Registry System   The Registry will lead to a deeper understanding of novel therapies and predictive biomarkers that will significantly impact patient lives at scale.   SAN DIEGO, Jan 11, 2022  — Seqster PDM, Inc. (“Seqster“), the leading patient-centric healthcare technology company,… Read More »The National Pancreas Foundation Partners with Seqster to Launch a New Dynamic Patient Registry System

Dick’s Story

For as long as I can remember, eating has made me uncomfortable.  I often felt best when a skipped a meal or two.  Maybe a food allergy?  Although I never delved further because it just seemed like it was normal.  A gastroenterologist considered IBS and other things, but tests ruled those out, so nothing was… Read More »Dick’s Story

Cesiley’s Story

How old was Cesiley when she first had their first bout of pancreatitis?  Cesiley was 3 ½ when she first had any symptoms. We thought she just had a rotavirus that was going around her school because she was not able to keep anything down but she was unusually moaning in pain. We took her… Read More »Cesiley’s Story

Lindsey’s Story

My name is Lindsey Fontenot, I’m 23 years old and live in Berkeley CA.  How old were you when you first had your first bout of pancreatitis? I was 13 years old when I had my first attack. I was headed off for a field hockey camp at Stanford University. Unfortunately, I couldn’t play because… Read More »Lindsey’s Story

The National Pancreas Foundation Announces the Designation of Ten Additional NPF Centers of Excellence and Forty Renewals

THE NATIONAL PANCREAS FOUNDATION FOR IMMEDIATE RELEASE   The National Pancreas Foundation Announces the Designation of Ten Additional NPF Centers of Excellence and Forty Renewals. BETHESDA, MD – November 1, 2021 – The National Pancreas Foundation (NPF), a nonprofit organization that provides hope for those suffering from pancreatitis and pancreatic cancer, announces the designation of… Read More »The National Pancreas Foundation Announces the Designation of Ten Additional NPF Centers of Excellence and Forty Renewals