Who is this for?
Anyone who has been diagnosed and/or treated for any pancreatic condition, such as:
- Acute Pancreatitis
- Recurrent Acute Pancreatitis
- Pediatric Pancreatitis
- Chronic Pancreatitis
- Pancreatic Cysts
- Pancreatic Insufficiency
- Pancreatic Cancer
- Familial Chylomicronemia Syndrome
We are glad you are here. As a patient-founded organization, we know your journey has not been easy. Rest assured, you are no longer alone. By joining the NPF Registry, you will become part of an active patient-focused community that is here to help each other find answers and discover ways that will change lives for the good.
Working together to make a difference
The National Pancreas Foundation (NPF) has partnered with Seqster to create the country’s largest, most inclusive, patient-centric pancreatic disease patient registry.
Once you join, you will have access to an easy-to-use health information management tool, and the ability to link to participating U.S.-based patient portals and add health records from multiple providers to your profile.
All in one place.
• Educational resources provided by NPF
• Shareable patient-directed health cards to share with your providers, family, & caregivers
• Interactive patient-centric surveys focused on nutrition & quality of life
By joining the registry, you are taking the first critical step toward helping the medical community understand the pancreas better. Our physicians and research partners have asked us to help them gather as much information as possible about patients’ unique medical conditions so they can answer research questions faster.
Privacy and Security
You, too, can become a part of the NPF Registry patient-centric community as we take a stand and make lives better.
If you have any questions about the NPF Registry, then please feel free to contact us. Our office is open Monday through Friday from 9:00 am to 5:00 pm EST, excluding holidays. You can contact us at the following information:
The National Pancreas Foundation (NPF)
The National Pancreas Foundation is a non-profit organization committed to improving the quality of life of all those afflicted by pancreatic diseases. We are changing the face of pancreatic disease through our National Chapters, Centers of Excellence, and a National Patient Registry, which provide aid to those in need, support to advance research, and advocate to improve treatment options.
Seqster works with organizations like the National Pancreas Foundation to empower, inform, and unite communities. With the power of Seqster’s technology, the NPF Patient Registry offers access to an exclusive digital tool to help manage everyday health for you and your family, while helping to contribute to the NPF’s efforts to support research and accelerate progress towards a better quality of life and a means to end pancreatic disease.