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Welcome to the National Pancreas Foundation Patient Registry

The National Pancreas Foundation has partnered with Seqster to create the NPF Patient Registry, the country’s largest, most inclusive pancreatic disease patient registry.

We are glad you are here. As a patient-founded organization, we know your journey has not been easy. Rest assured, you are no longer alone. By joining the NPF Patient Registry you will become part of an active community that is here to help each other find answers and discover treatments that will change lives for the good.

Take The First Step

By joining the registry, you are taking the first critical step toward helping the medical community understand the pancreas better. Our physicians and research partners have asked us to help gather as much information about patients’ unique medical conditions as possible so they can answer research questions faster.

All In One Place

Once you join you will have access to an easy-to-use health information management tool, educational resources provided by NPF, and the ability to link to participating US-based patient portals and health records from multiple providers to your participant registry account. All in one place.

3 Easy Steps to Register

    1. Set Up Your Profile
      • We will ask a few questions to get you started. Registration is quick and easy.
    2. Connect Records
      • Connect your medical records so they are always on hand. Choose from a displayed provider in your area or easily search for your provider by name or zip code and connect your records directly to your account.
    3. Explore Your Data and Enjoy!
      • View and manage all of your health data in your own personal dashboard.

 

Privacy and Security

Any information you provide will be protected in accordance with Seqster’s privacy policy and internal security policy.

Act Now

Please register with the National Pancreas Foundation Patient Registry and take the first survey. In under ten minutes, you, too, can become part of the NPF Patient Registry community as we take a stand and make lives better.health

Working together to make a difference

Seqster works with organizations like National Pancreas Foundation to empower, inform, and unite communities. Join the national pancreas foundation empower patient registry group to access exclusive resources, participate in surveys, and contribute to National Pancreas Foundations research efforts.

Who is this for?

Anyone who is diagnosed and/or treated for any pancreatic condition such as:

  • Acute Pancreatitis
  • Recurring Acute Pancreatitis
  • Chronic Pancreatitis
  • Pancreatic Cysts
  • Pancreatic Insufficiency
  • Pancreatic Cancer
  • Familial Chylomicronemia Syndrome

The National Pancreas Foundation (NPF) is a non-profit organization committed to improving the quality of life for those afflicted with pancreatic diseases. We are changing the face of pancreatic disease through our chapters, centers of excellence, and national patient registry, which provide support, advance research, and improve treatment options. pancreasfoundation.org

Welcome to the National Pancreas Foundation Patient Registry

The National Pancreas Foundation has partnered with Seqster to create the NPF Patient Registry, the country’s largest, most inclusive pancreatic disease patient registry.

We are glad you are here. As a patient-founded organization, we know your journey has not been easy. Rest assured, you are no longer alone. By joining the NPF Patient Registry you will become part of an active community that is here to help each other find answers and discover treatments that will change lives for the good.

Take The First Step

By joining the registry, you are taking the first critical step toward helping the medical community understand the pancreas better. Our physicians and research partners have asked us to help gather as much information about patients’ unique medical conditions as possible so they can answer research questions faster.

All In One Place

Once you join you will have access to an easy-to-use health information management tool, educational resources provided by NPF, and the ability to link to participating US-based patient portals and health records from multiple providers to your participant registry account. All in one place.

3 Easy Steps to Register

    1. Set Up Your Profile
      • We will ask a few questions to get you started. Registration is quick and easy.
    2. Connect Records
      • Connect your medical records so they are always on hand. Choose from a displayed provider in your area or easily search for your provider by name or zip code and connect your records directly to your account.
    3. Explore Your Data and Enjoy!
      • View and manage all of your health data in your own personal dashboard.

 

Privacy and Security

Any information you provide will be protected in accordance with Seqster’s privacy policy and internal security policy.

Act Now

Please register with the National Pancreas Foundation Patient Registry and take the first survey. In under ten minutes, you, too, can become part of the NPF Patient Registry community as we take a stand and make lives better.health

Working together to make a difference

Seqster works with organizations like National Pancreas Foundation to empower, inform, and unite communities. Join the national pancreas foundation empower patient registry group to access exclusive resources, participate in surveys, and contribute to National Pancreas Foundations research efforts.

Who is this for?

Anyone who is diagnosed and/or treated for any pancreatic condition such as:

  • Acute Pancreatitis
  • Recurring Acute Pancreatitis
  • Chronic Pancreatitis
  • Pancreatic Cysts
  • Pancreatic Insufficiency
  • Pancreatic Cancer
  • Familial Chylomicronemia Syndrome

The National Pancreas Foundation (NPF) is a non-profit organization committed to improving the quality of life for those afflicted with pancreatic diseases. We are changing the face of pancreatic disease through our chapters, centers of excellence, and national patient registry, which provide support, advance research, and improve treatment options. pancreasfoundation.org