Patient Portal Registration

To register to participate in the online Patient Portal of the NPF National Patient Registry, please complete the following information shown below. All information you share with us will be held in the strictest confidence and your identity will be securely protected.

If you are a parent, caregiver, or representative, then you may enter information on behalf of the participant with their permission.

After you complete the following registration form, you will be required to review and provide your consent to participate in the online Patient Portal of the NPF National Patient Registry.

NOTE: We ask that you allow at least 24-48 hours for NPF to review and approve your registration information in order to receive your initial login information by e-mail.