Welcome

We are glad you are here. As a patient-founded organization, we know your journey has not been easy. Rest assured, you are no longer alone. By joining the NPF Registry, you will become part of an active patient-focused community that is here to help each other find answers and discover ways that will change lives for the good.

Working together to make a difference

The National Pancreas Foundation (NPF) has partnered with Seqster to create the country’s largest, most inclusive, patient-centric pancreatic disease patient registry.

For You

Once you join, you will have access to an easy-to-use health information management tool, and the ability to link to participating U.S.-based patient portals and add health records from multiple providers to your profile.
All in one place.

Coming Soon!

• Educational resources provided by NPF
• Shareable patient-directed health cards to share with your providers, family, & caregivers
• Interactive patient-centric surveys focused on nutrition & quality of life

First Step

By joining the registry, you are taking the first critical step toward helping the medical community understand the pancreas better. Our physicians and research partners have asked us to help them gather as much information as possible about patients’ unique medical conditions so they can answer research questions faster.

Privacy and Security

Any information you provide will be protected in accordance with Seqster’s privacy policy and internal security policy.

Act Now

You, too, can become a part of the NPF Registry patient-centric community as we take a stand and make lives better.