Pancreatitis Externally-led Patient-Focused Drug Development Meeting

March 3, 2020 |  Silver Spring Civic Building – 1 Veterans Pl, Silver Spring, MD 20910

8:30 AM – 12:30 PM EST

 

TO watch THE MEETING, PLEASE CLICK HERE.

The National Pancreas Foundation, the only foundation dedicated to patients who are suffering from all forms of pancreas disease, held it’s first-ever, EL-PFDD meeting on pancreatitis on March 3rd. The meeting was dedicated to our our pancreatitis community and the U.S. Food and Drug Administration (FDA). Through the EL-PFDD meeting, it will advance the NPF’s mission of providing hope for those suffering from pancreatitis and pancreatic cancer through funding cutting edge researchadvocating for new and better therapies, and providing support and education for patients, caregivers, and health care professionals.

What is an externally-led Patient-Focused Drug Development (PFDD) Meeting?

PFDD meetings give voice to the patients and bring patient insight into the drug development process. The PFDD meeting is for patients, caregivers, and family members. This half-day event will primarily be focused on a panel of patients which will follow a town-hall style discussion led by a moderator.  The topics covered will be the symptoms and impacts to daily life that are most important to patients and future treatments. Panelists will be patients that have acute, chronic, and pediatric pancreatitis along with caregivers.

For more information, on PFDD meetings, please CLICK HERE.

To see the agenda, please CLICK HERE.

Why is the EL-PFDD meeting so important?

The information and input from this PFDD meeting can inform and shape the FDA and stakeholders’ decisions regarding drug development and their review of a marketing application.

Who should attend the EL-PFDD meeting?

We want to fill the room and make sure that everyone affected by pancreas disease is able to be a part of this meeting whether you are a patient, caregiver, or family member. We will also have a webcast and want those that aren’t able to join in person, to sign-in through our live-stream. The live-stream is not just for those in the U.S – pancreatitis has no bounds and we encourage our international pancreas community members to RSVP and sign-in as well! The URL for the live-stream will be provided to those registered (for the webcast) by 7 AM EST. 

How can I contribute to the meeting? 

  1. RSVP to attend the meeting in person at the Silver Spring Civic Building (space is limited!) OR the live stream. The registration is below.
  2. Promote on social media and help us get the word out! We can’t do this alone! Please use the hashtag: #NPF_PFDD!
  3. Actively participate in the live polling and surveys during the meeting.
  4. Raise your hand and speak your mind during the live, moderated discussion.
  5. Donate to the NPF so we can continue to bring awareness and advocacy to pancreas disease – you can DONATE HERE.

 

Have questions? Please email Programs Manager, Sokphal Tun at: stun@pancreasfoundation.org.