How old was Jordan when he had his first pancreatitis attack? What were the symptoms? What did you think it was initially? Jordan was diagnosed at the age of three. His symptoms started quite some time before his official diagnosis,…
My exocrine pancreatic insufficiency (EPI) symptoms started in my thirties with diarrhea on a daily basis and constant hunger as a result. I didn’t understand why it was happening and used anti-diarrheal medication to try to lessen symptoms. My weight…
Hi, my name is Victoria Wade. I am 22 years old, and I have chronic/hereditary pancreatitis. How old were you when you had your first bout of pancreatitis? I had my first undiagnosed attack at 8 years old. However, my…
Our son Matthew was born in December of 2019. Shortly after he was born, our trips to the ER seemed never ending. January of 2020 was when Matthew started having stomach issues. He had problems taking his bottle and also…
Can you tell us about what happened to Zoey’s pancreas? Zoey’s pancreatic injury happened on July 22, 2020. It was an extremely hot day, so Zoey and her brother, Zachary, were inside for most of the day. After dinner, they…
Ezra was 9-years-old when he had his first pancreatitis attack. In this story, his parents recount his journey with pancreatitis, how they learned to advocate for their son, and provide advice for caregivers going through the same situation. It happened…
How old were you when you had your first bout of FCS? What were the symptoms? When I was a baby, younger than a year old, I had a soft lump on my upper back just between my shoulder blades.…
Bella’s Mission to Help Kids Like Her Most every kid deals with a fear of monsters at some point. Monsters under the bed or in the closet. Monsters in movies or books that later make a special guest appearance in…