Skip to content

Matthew’s Story

webmastercolin@gmail.comSep 15, 20223 min read
Matthew’s Story

Our son Matthew was born in December of 2019.  Shortly after he was born, our trips to the ER seemed never ending. January of 2020 was when Matthew started having stomach issues. He had problems taking his bottle and also…

Zoey’s Story

webmastercolin@gmail.comAug 5, 202211 min read
Zoey’s Story

Can you tell us about what happened to Zoey’s pancreas? Zoey’s pancreatic injury happened on July 22, 2020. It was an extremely hot day, so Zoey and her brother, Zachary, were inside for most of the day. After dinner, they…

Ezra’s Story

webmastercolin@gmail.comAug 1, 20227 min read
Ezra’s Story

Ezra was 9-years-old when he had his first pancreatitis attack. In this story, his parents recount his journey with pancreatitis, how they learned to advocate for their son, and provide advice for caregivers going through the same situation. It happened…

Soniya’s Story

Catie McGilvrayJul 6, 20227 min read
Soniya’s Story

How old were you when you had your first bout of FCS? What were the symptoms? When I was a baby, younger than a year old, I had a soft lump on my upper back just between my shoulder blades.…

Bella’s Story

webmastercolin@gmail.comJun 17, 20225 min read
Bella’s Story

Bella’s Mission to Help Kids Like Her   Most every kid deals with a fear of monsters at some point. Monsters under the bed or in the closet. Monsters in movies or books that later make a special guest appearance in…

Jenny’s Story

webmastercolin@gmail.comMay 27, 20223 min read
Jenny’s Story

Mental Health and Pancreas DiseaseBy Jenny Jones, Pancreatitis Patient Advocate I started getting sick with pancreatitis when I was in third grade, 9 years old.  This disease impacted me physically and mentally.  I was in excruciating pain, unable to gain weight,…

Edmund’s Story

webmastercolin@gmail.comMay 7, 20223 min read
Edmund’s Story

My pancreatitis journey began in 2017; although at first – I didn’t know it was pancreatitis. It began with a stabbing pain that shot through my back. Since I’ve had four back surgeries, I thought the pain could be orthopedic…

Dean’s Story

webmastercolin@gmail.comMay 6, 20224 min read
Dean’s Story

Dean with his wife Nanci Ever since I can remember I’ve not felt well and often this feeling was accompanied by severe pain and recurring hospital visits. For most of my youth, I spent about several weeks of every year…