Our son Matthew was born in December of 2019. Shortly after he was born, our trips to the ER seemed never ending. January of 2020 was when Matthew started having stomach issues. He had problems taking his bottle and also…
Can you tell us about what happened to Zoey’s pancreas? Zoey’s pancreatic injury happened on July 22, 2020. It was an extremely hot day, so Zoey and her brother, Zachary, were inside for most of the day. After dinner, they…
Ezra was 9-years-old when he had his first pancreatitis attack. In this story, his parents recount his journey with pancreatitis, how they learned to advocate for their son, and provide advice for caregivers going through the same situation. It happened…
How old were you when you had your first bout of FCS? What were the symptoms? When I was a baby, younger than a year old, I had a soft lump on my upper back just between my shoulder blades.…
Bella’s Mission to Help Kids Like Her Most every kid deals with a fear of monsters at some point. Monsters under the bed or in the closet. Monsters in movies or books that later make a special guest appearance in…
Mental Health and Pancreas DiseaseBy Jenny Jones, Pancreatitis Patient Advocate I started getting sick with pancreatitis when I was in third grade, 9 years old. This disease impacted me physically and mentally. I was in excruciating pain, unable to gain weight,…
My pancreatitis journey began in 2017; although at first – I didn’t know it was pancreatitis. It began with a stabbing pain that shot through my back. Since I’ve had four back surgeries, I thought the pain could be orthopedic…
Dean with his wife Nanci Ever since I can remember I’ve not felt well and often this feeling was accompanied by severe pain and recurring hospital visits. For most of my youth, I spent about several weeks of every year…