The National Pancreas Foundation

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So far NPF Staff has created 24 blog entries.

Suzie’s Story – Our Kids’ Journey with Hereditary Pancreatitis

Hi, my name is Suzanne Jurgensen, and I live in McCallsburg, Iowa, with my husband, Aric, and our three amazing children: Sawyer (12), Nolan (6), and Avery (3). All three have hereditary pancreatitis, a rare and painful condition that runs in Aric's family. I thought I understood pancreatitis when I started dating Aric. I [...]

2025-10-30T15:12:13-04:00October 23rd, 2025|

Finding Balance, Purpose, and Joy: A Conversation with Dr. Taylor Riall

Dr. Taylor Riall has spent her career caring for patients with pancreatic disease. As a surgeon, mentor, and researcher, she is known for her compassion and deep respect for the people she treats. But when she herself became a patient in 2021, her outlook shifted in ways that changed how she practices medicine, mentors [...]

2025-10-30T22:12:06-04:00October 23rd, 2025|

Alicia C’s Story

My name is Alicia Cook, and I'm a breast cancer survivor. Actually, by the time you read this, I'll be able to say I'm a three-time survivor now recovering. But that's not my reason for speaking to you today. You see, I'm also a daughter. And three years ago, I lost my dad [...]

2025-10-17T12:23:38-04:00October 16th, 2025|

Alicia A’s Story

Alicia A. from West Virginia was diagnosed with Stage 3 pancreatic cancer in 2021. In her story, she recounts the moment she received the life-altering news and the complex emotions that followed. She shares the challenges of undergoing treatment but highlights the profound impact of human connection throughout her journey, and advice [...]

2025-09-03T12:07:19-04:00September 3rd, 2025|

Angie and Joseph’s Story

Mom, Angie, 37, and son, Joseph, 17, have been affected by pancreas disease for nearly their entire lives. They sat down with us at The NPF to share their stories with hopes of reminding others that they are not alone in the fight against pancreas disease and offering hope to all those affected. Thank [...]

2025-08-18T15:04:34-04:00August 18th, 2025|

Dave’s Story

My name is Dave Repczynski and I am from the Boston area. I am 48 years old and previously a totally healthy guy. My pancreas disease journey started in September 2022, on a day just like any other. I had lunch with my wife, and all was well, until the most prolonged and [...]

2024-11-08T13:44:02-05:00November 8th, 2024|

Soniya’s Story

How old were you when you had your first bout of FCS? What were the symptoms? When I was a baby, younger than a year old, I had a soft lump on my upper back just between my shoulder blades. My parents had taken me to the doctor to get it checked out. They [...]

2024-07-03T15:17:37-04:00July 6th, 2022|

Lee’s Story

My name is Lee Zeidman. I am a Strategic Communications Consultant and pancreatic cancer survivor. I’m a native Washingtonian. I was part of the team that launched CNN in 1980. I also was a local sportscaster early in my career in Washington, D.C. and New York City. What were your symptoms of pancreatic cancer? [...]

2024-07-03T14:20:20-04:00January 26th, 2022|

My Journey to Find Hope with Familial Chylomicronemia Syndrome

Throughout my childhood, I was a very active kid. I spent many days working on my grandfather’s dairy farm and enjoyed skiing and playing football, soccer and basketball. While to others I seemed like a normal relatively healthy boy, looking back I now can see that I was living with symptoms that indicated that [...]

2025-03-21T17:31:12-04:00January 27th, 2017|

Kimberly’s Story of Courage

THE “ANGRY ORGAN” An attack of Acute Necrotizing Pancreatitis due to Hypertriglyceridemia (Type I Hyperlipoproteinemia or Chylomicronemia) In Honor of Dr. Singh, Dr. Mackary, Dr. Law, Christi Welsh, at Johns Hopkins University Hospital and Dr. Seoudi, Dr. Griffin, Dr. Machetti and the entire Trauma team at Inova Fairfax Hospital and each and every nurse that [...]

2017-01-26T16:49:37-05:00January 26th, 2017|
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