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So far NPF Staff has created 17 blog entries.

Lee’s Story

My name is Lee Zeidman. I am a Strategic Communications Consultant and pancreatic cancer survivor. I’m a native Washingtonian. I was part of the team that launched CNN in 1980. I also was a local sportscaster early in my career in Washington, D.C. and New York City. What were your symptoms of pancreatic cancer? [...]

2022-09-01T06:05:17-04:00January 26th, 2022|

My Journey to Find Hope with Familial Chylomicronemia Syndrome

FCS occurs in about 1 in 1 million people and the disorder causes the body to not be able to break down certain fats correctly. This disease frequently leads to symptoms such as pancreatitis — a very serious condition that causes inflammation of the pancreas and can lead to death – and fatty deposits in [...]

2017-01-27T10:40:08-05:00January 27th, 2017|

Kimberly’s Story of Courage

THE “ANGRY ORGAN” An attack of Acute Necrotizing Pancreatitis due to Hypertriglyceridemia (Type I Hyperlipoproteinemia or Chylomicronemia) In Honor of Dr. Singh, Dr. Mackary, Dr. Law, Christi Welsh, at Johns Hopkins University Hospital and Dr. Seoudi, Dr. Griffin, Dr. Machetti and the entire Trauma team at Inova Fairfax Hospital and each and every nurse that [...]

2017-01-26T16:49:37-05:00January 26th, 2017|

Ashlynn’s Story of Courage

When I was 8 years old all of the doctors thought I had a “flu” or “strep throat”. Then when I was 10, we decided to go to a different doctor and they diagnosed me with chronic pancreatitis. This whole concept changed my life when they doctors told me I was not able to play [...]

2017-01-26T16:40:10-05:00January 26th, 2017|

Sue and Adam’s Story

My fiancée was diagnosed with chronic/acute pancreatitis in May of 2012. Few days after his birthday he and I were on our way to the hospital because of the abdominal pain he was suffering. My fiancée, Adam, had a seizure in the driveway, nearly missing the drain grates. I was scared and did what I [...]

2017-01-23T16:37:30-05:00January 23rd, 2017|

Vera’s Story

Last year I was diagnosed with pancreatic cancer. It was found at an early stage and upon leaving my physician office I was already scheduled for surgery. It was hard to encompass the diagnosis I was given or comprehend the enormity of the surgery that was going to occur. I went through many emotions. I [...]

2017-01-22T16:38:43-05:00January 22nd, 2017|

Hanah’s Hope

Imagine having a servere pain that comes and goes, never knowing when it will hit. You go to the doctor but they tell you it’s acid reflux and send you on your way. You know something isn’t right and finally it gets so bad you can’t walk or stand up. You go to the emergency [...]

2017-01-21T16:39:32-05:00January 21st, 2017|

Julie’s Story of Courage

What I Have Learned from Pancreatitis YOU are the EXPERT on your body. Your doctors know medicine but they don’t know you. Give them the information they need to do their job well: If you are feeling poorly, track your symptoms and your food, so you can give your doctors DATA, not anecdotes. This will [...]

2017-01-19T16:40:44-05:00January 19th, 2017|

Steven’s Story of Courage

I am a two-time survivor of pancreatic adenocarcinoma (Whipple procedure, 2007; liver surgery after metastasis, 2010) who has been cancer free and in excellent health for the past 4 1/2 years. When my liver metastasis was diagnosed, the oncologist talked to me briefly, recommended palliative care and walked out of the room. Instead, I aggressively [...]

2017-01-18T16:41:41-05:00January 18th, 2017|

Dan’s Story of Courage

I first had my first acute attack in August 2012. They thought it was gall bladder related so I had a cholecystectomy and after a few days I was released. I had no problems for the next 6 months or so. In February 2013 I again had another acute attack and was admitted to the [...]

2017-01-17T16:42:12-05:00January 17th, 2017|

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