Ezra was 9-years-old when he had his first pancreatitis attack. In this story, his parents recount his journey with pancreatitis, how they learned to advocate for their son, and provide advice for caregivers going through the same situation. It happened suddenly. Very early one morning, I received a phone call from Ezra’s friend’s mom. Ezra [...]
Bella's Mission to Help Kids Like Her Most every kid deals with a fear of monsters at some point. Monsters under the bed or in the closet. Monsters in movies or books that later make a special guest appearance in our dreams. As a carefree 12-year-old, Bella was almost a teenager—old enough to know that [...]
Mental Health and Pancreas DiseaseBy Jenny Jones, Pancreatitis Patient Advocate I started getting sick with pancreatitis when I was in third grade, 9 years old. This disease impacted me physically and mentally. I was in excruciating pain, unable to gain weight, feeling alone, misunderstood, and very different. As a result, I became anxious and depressed. As a [...]
My pancreatitis journey began in 2017; although at first - I didn’t know it was pancreatitis. It began with a stabbing pain that shot through my back. Since I’ve had four back surgeries, I thought the pain could be orthopedic in nature. I saw my orthopedist and began by getting lumbar shots, acupuncture and physical [...]
Dean with his wife Nanci Ever since I can remember I've not felt well and often this feeling was accompanied by severe pain and recurring hospital visits. For most of my youth, I spent about several weeks of every year missing school or being in the hospital. Most of the time in horrible pain that [...]
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