Webinar: Updates in the Field of Pancreatic Cysts

Patient/Caregiver Stories

Marley’s Story

My name is Marley C., I am in my 20s and live in West Virginia. In October 28th, 2022, at 6:30 in the morning I was in a bad car accident. The injuries resulting from this accident were kidney lacerations, grade 5 liver lacerations, and grade 3 pancreatic lacerations with duct injuries. All the [...]

2023-08-01T11:48:10-04:00August 1st, 2023|

Elizabeth’s Story

Elizabeth’s Story of Idiopathic Pancreatitis Hi, my name is Elizabeth S., and I have idiopathic chronic pancreatitis. I am 29 years old and live on Long Island in New York. My first documented case of pancreatitis was in September of 2020. When it first started, I thought I had a stomach bug. It then [...]

2023-05-05T15:20:03-04:00May 5th, 2023|

Brittney’s Story

My story began on April 1,  2022, I had been experiencing abdominal pain earlier in the week and passed it off as severe (yet unusual) period pain. It wasn't until I was having trouble breathing that my boyfriend said it's time to go to the emergency room. The doctors baffled me when they told [...]

2023-03-26T11:03:08-04:00March 13th, 2023|

Sakshi’s Story

How old were you when you first had your first bout of EPI?  I was about 11.5- 12 years old when I had EPI symptoms, but I was diagnosed at the age of 28. This was when my condition has severely damaged and had to be frequently hospitalized. I am 29 years old now, [...]

2023-03-26T11:04:00-04:00March 13th, 2023|

Rachel’s Story

I’ve had stomach issues for as long as I can remember, however in the last 10 years they got severely worse and debilitating and within the last 3 years it got so bad my day to day functions were hugely impacted. In the summer of 2021 it got so bad, where every time I [...]

2023-03-26T11:01:55-04:00February 28th, 2023|

Sarah’s Story

How old were you when you first had your first bout of pancreatitis? I was 34 years old What did you think it was initially? On March 19, 2021, I gave birth to our son, Noah. On March 22, 2021, I went to the ER at (Memorial Regional) for severe abdominal pains. Here, they [...]

2023-03-26T11:05:14-04:00February 28th, 2023|

Jordan’s Story

How old was Jordan when he had his first pancreatitis attack? What were the symptoms? What did you think it was initially?   Jordan was diagnosed at the age of three. His symptoms started quite some time before his official diagnosis, but I didn’t realize that until after the fact. From an infant Jordan [...]

2023-03-26T12:11:08-04:00January 10th, 2023|

Dee’s Story

My exocrine pancreatic insufficiency (EPI) symptoms started in my thirties with diarrhea on a daily basis and constant hunger as a result. I didn’t understand why it was happening and used anti-diarrheal medication to try to lessen symptoms.  My weight would fluctuate and because of this I had bouts of gastritis frequently. All the [...]

2023-03-26T12:12:02-04:00November 10th, 2022|

Victoria’s Story

Hi, my name is Victoria Wade. I am 22 years old, and I have chronic/hereditary pancreatitis. How old were you when you had your first bout of pancreatitis? I had my first undiagnosed attack at 8 years old. However, my first diagnosed pancreatitis attack was at 18 years old. What did you think it was [...]

2022-10-12T23:25:07-04:00October 12th, 2022|

Matthew’s Story

Our son Matthew was born in December of 2019.  Shortly after he was born, our trips to the ER seemed never ending. January of 2020 was when Matthew started having stomach issues. He had problems taking his bottle and also had a lot of problems with spit up. All doctors we spoke to about our [...]

2022-09-15T12:53:04-04:00September 15th, 2022|

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