My story began on April 1, 2022, I had been experiencing abdominal pain earlier in the week and passed it off as severe (yet unusual) period pain. It wasn't until I was having trouble breathing that my boyfriend said it's time to go to the emergency room. The doctors baffled me when they told [...]
How old were you when you first had your first bout of EPI? I was about 11.5- 12 years old when I had EPI symptoms, but I was diagnosed at the age of 28. This was when my condition has severely damaged and had to be frequently hospitalized. I am 29 years old now, [...]
I’ve had stomach issues for as long as I can remember, however in the last 10 years they got severely worse and debilitating and within the last 3 years it got so bad my day to day functions were hugely impacted. In the summer of 2021 it got so bad, where every time I [...]
How old were you when you first had your first bout of pancreatitis? I was 34 years old What did you think it was initially? On March 19, 2021, I gave birth to our son, Noah. On March 22, 2021, I went to the ER at (Memorial Regional) for severe abdominal pains. Here, they [...]
How old was Jordan when he had his first pancreatitis attack? What were the symptoms? What did you think it was initially? Jordan was diagnosed at the age of three. His symptoms started quite some time before his official diagnosis, but I didn’t realize that until after the fact. From an infant Jordan was [...]
My exocrine pancreatic insufficiency (EPI) symptoms started in my thirties with diarrhea on a daily basis and constant hunger as a result. I didn’t understand why it was happening and used anti-diarrheal medication to try to lessen symptoms. My weight would fluctuate and because of this I had bouts of gastritis frequently. All the [...]
Hi, my name is Victoria Wade. I am 22 years old, and I have chronic/hereditary pancreatitis. How old were you when you had your first bout of pancreatitis? I had my first undiagnosed attack at 8 years old. However, my first diagnosed pancreatitis attack was at 18 years old. What did you think it was [...]
Our son Matthew was born in December of 2019. Shortly after he was born, our trips to the ER seemed never ending. January of 2020 was when Matthew started having stomach issues. He had problems taking his bottle and also had a lot of problems with spit up. All doctors we spoke to about our [...]
Can you tell us about what happened to Zoey’s pancreas? Zoey’s pancreatic injury happened on July 22, 2020. It was an extremely hot day, so Zoey and her brother, Zachary, were inside for most of the day. After dinner, they asked to go outside and ride their bikes. We live in an area where there [...]
Ezra was 9-years-old when he had his first pancreatitis attack. In this story, his parents recount his journey with pancreatitis, how they learned to advocate for their son, and provide advice for caregivers going through the same situation. It happened suddenly. Very early one morning, I received a phone call from Ezra’s friend’s mom. Ezra [...]
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