Success Stories

My Journey to Find Hope with Familial Chylomicronemia Syndrome

Categories: Success Stories
FCS occurs in about 1 in 1 million people and the disorder causes the body to not be able to break down certain fats correctly. This disease frequently leads to symptoms such as pancreatitis — a very serious condition that causes inflammation of the pancreas and can lead to death – and fatty deposits in …

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Kimberly’s Story of Courage

Categories: Success Stories
THE “ANGRY ORGAN” An attack of Acute Necrotizing Pancreatitis due to Hypertriglyceridemia (Type I Hyperlipoproteinemia or Chylomicronemia) In Honor of Dr. Singh, Dr. Mackary, Dr. Law, Christi Welsh, at Johns Hopkins University Hospital and Dr. Seoudi, Dr. Griffin, Dr. Machetti and the entire Trauma team at Inova Fairfax Hospital and each and every nurse that …

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Ashlynn’s Story of Courage

Categories: Success Stories
When I was 8 years old all of the doctors thought I had a “flu” or “strep throat”. Then when I was 10, we decided to go to a different doctor and they diagnosed me with chronic pancreatitis. This whole concept changed my life when they doctors told me I was not able to play …

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Sue and Adam’s Story

Categories: Success Stories

My fiancée was diagnosed with chronic/acute pancreatitis in May of 2012. Few days after his birthday he and I were on our way to the hospital because of the abdominal pain he was suffering. My fiancée, Adam, had a seizure in the driveway, nearly missing the drain grates. I was scared and did what I …

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Vera’s Story

Categories: Success Stories

Last year I was diagnosed with pancreatic cancer. It was found at an early stage and upon leaving my physician office I was already scheduled for surgery. It was hard to encompass the diagnosis I was given or comprehend the enormity of the surgery that was going to occur. I went through many emotions. I …

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