Success Stories

Registry Patient Testimonial

Categories: Success Stories

Why did you decide to join the NPF Registry? I volunteered to participate in the NPF Registry because I want to help fight for a cure for pancreatic disease. As a patient myself, I can tell you the daily struggles are real and can be very limiting. I want to create a better future for …

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Reclaiming Her Life – Danielle’s Story

Categories: Success Stories
When did your pancreas story begin? Nearly 10 years ago, I began suffering from abdominal pain, nausea, and difficulty eating. It took many years of appointments, testing, and other procedures for me to be diagnosed with Chronic Pancreatitis due to a ductal abnormality. Despite a cholecystectomy and other endoscopic procedures including multiple ERCPs with stenting, …

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From Patient to Advocate – Barbara’s Story

Categories: Success Stories
It all started as a child! I never knew why every time I was stressed or excited, which was a lot with a family of six children, a great Mom, and an alcoholic father, I would have these bad belly aches, nausea, and vomiting. It would happen during book reports in front of the class, …

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Bringing Joy with Toys – Riky’s Story

Categories: Success Stories
Alarik “Riky” Howard is an exemplary thirteen-year-old boy who resides in Northwest Indiana.   As the Midwest braces itself for a chilly winter, Riky’s heart is far from cold.  He was diagnosed with severe chronic pancreatitis when he was just six years old. After countless prolonged stays at Indianapolis’ Riley Children’s Hospital and numerous surgeries, Riky …

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Walking Warrior – Karen’s Story

Categories: Success Stories
In 2016, I decided to do the Indianapolis Women’s Half Marathon and walked alongside my Mom, sister, and cousin. After completing it and finishing in 3 hours and 12 minutes, I decided to register for the race again in 2017. Walking for hours does not come easily to me. Along with being a Type 1 …

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