Patient Stories

Twice The Caregiver – Kathleen’s Story

Categories: Success Stories
When did your introduction to pancreas disease start? In looking back on my experiences, my absolute first memory of being introduced to pancreatic disease was in 2011 when working in an Emergency Department of a Level 1 Trauma Center. An elderly female patient came in to be evaluated for abdominal pain; her daughter accompanied her. …

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170 Laps (or Rucking through Pancreatitis) – Matt’s Story

Categories: Success Stories
In May of 2014, I woke up one morning and had what I thought was really bad indigestion along with some abdominal pain. I had physical therapy that morning from a recent shoulder surgery and went about my morning routine as usual. While at PT, the pain started to get severe and I was sweating …

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A Patient and Caregiver’s Perspective – June and Rod’s Story

Categories: Success Stories
My official journey with pancreatic disease began in February 2012 when I was diagnosed. I had my gallbladder removed back in 1982 after delivering my first child. For years I would experience what to me felt like gallbladder attacks. A searing knife like pain in my back that extended through the front, intense nausea, and …

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A Fixed and Full Tummy – Rylan’s Story

Categories: Success Stories
Rylan, 5, was a year and half old when he was officially diagnosed with idiopathic pancreatitis. July 2018 he had a  total pancreatectomy with islet autotransplantation (TPIAT). Through his Mom, Haley Grammer, she shares Rylan’s journey with pancreatitis.  From the time of birth to the diagnosis of pancreatitis Rylan cried ALL of the time as a …

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