Patient Stories

A Letter to FCS – Alvin’s Story

Categories: Success Stories
Familial Chylomicronemia Syndrome (FCS) occurs in about 1 in 1 million people and the genetic disorder causes the body to not be able to break down certain fats correctly. This disease frequently leads to symptoms such as pancreatitis — a very serious condition that causes inflammation of the pancreas and can lead to death – and fatty …

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A New Lease on Life – Cecilia’s Story

Categories: Success Stories
My story with pancreatitis started at the age of 12-years-old. Just a few weeks before I was supposed to start middle school I suddenly woke up with excruciating abdominal pain. My body ached and I kept throwing up, I couldn’t eat, drink, or sit down and I spent all day and most of the night …

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One Mile at a Time – Dave’s Story

Categories: Success Stories
I grew up being marvelled by movies and rollercoasters…little did I know that the last 18 months would match both of those. April 2017 – I had it all, extremely fortunate to have a successful career, amazing and loving family, nice house and car, fit and healthy and a wonderful and crazy social life with …

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18 Months – Doug’s Story

Categories: Success Stories
How do you explain to others what it is like to lose both parents to pancreatic cancer in less than 18 months? Frankly, you can’t. Instead, I would like to focus on the things that occurred during my parents’ lives, including their treatment and the moments that mattered most. My name is Doug Christiansen and …

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Erin’s Story of Hope and Strength

Categories: Success Stories
January 2015. We had just completed our first full year of living in Pennsylvania. Still adjusting to a new home, city, and state, we had started to make a few friends. I went from working full time in Colorado, to staying at home full time with our youngest child here. I had decided it was …

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