Patient Stories

In May of 2014, I woke up one morning and had what I thought was really bad indigestion along with some abdominal pain. I had physical therapy that morning from a recent shoulder surgery and went about my morning routine as usual. While at PT, the pain started to get severe and I was sweating …

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My official journey with pancreatic disease began in February 2012 when I was diagnosed. I had my gallbladder removed back in 1982 after delivering my first child. For years I would experience what to me felt like gallbladder attacks. A searing knife like pain in my back that extended through the front, intense nausea, and …

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Rylan, 5, was a year and half old when he was officially diagnosed with idiopathic pancreatitis. July 2018 he had a  total pancreatectomy with islet autotransplantation (TPIAT). Through his Mom, Haley Grammer, she shares Rylan’s journey with pancreatitis.  From the time of birth to the diagnosis of pancreatitis Rylan cried ALL of the time as a …

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I was diagnosed with chronic pancreatitis in 2017. In Ghana, where I live, the condition may be prevalent but it remains mainly undiagnosed. I knew nothing about it back then. I had never even heard of the name. I have known of people complaining of serious stomach aches and those who can, go to the …

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Attie Jamison, 14, remembers having pancreatitis attacks since she was 4 or 5, but her parents feel that she actually had attacks even before she could form sentences. “When Attie was 2, she would have unexplainable tummy pains, screaming in pain. We would drive to the ER and then maybe it would pass so we …

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