Patient Stories

Rylan, 5, was a year and half old when he was officially diagnosed with idiopathic pancreatitis. July 2018 he had a  total pancreatectomy with islet autotransplantation (TPIAT). Through his Mom, Haley Grammer, she shares Rylan’s journey with pancreatitis.  From the time of birth to the diagnosis of pancreatitis Rylan cried ALL of the time as a …

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I was diagnosed with chronic pancreatitis in 2017. In Ghana, where I live, the condition may be prevalent but it remains mainly undiagnosed. I knew nothing about it back then. I had never even heard of the name. I have known of people complaining of serious stomach aches and those who can, go to the …

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Attie Jamison, 14, remembers having pancreatitis attacks since she was 4 or 5, but her parents feel that she actually had attacks even before she could form sentences. “When Attie was 2, she would have unexplainable tummy pains, screaming in pain. We would drive to the ER and then maybe it would pass so we …

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Familial Chylomicronemia Syndrome (FCS) occurs in about 1 in 1 million people and the genetic disorder causes the body to not be able to break down certain fats correctly. This disease frequently leads to symptoms such as pancreatitis — a very serious condition that causes inflammation of the pancreas and can lead to death – and fatty …

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My story with pancreatitis started at the age of 12-years-old. Just a few weeks before I was supposed to start middle school I suddenly woke up with excruciating abdominal pain. My body ached and I kept throwing up, I couldn’t eat, drink, or sit down and I spent all day and most of the night …

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