Education Events

David Bakelman, CEO, National Pancreas Foundation – Welcome
Moderator: Darwin Conwell, MD

Speaker #1: - NMHA Resources and Operation Healthy You
Burgess Harrison, National Minority Health Association
Executive Director

Speaker #2: NPF Centers of Excellence: Resources and Care Coordination Upon Diagnosis
Darwin Conwell, MD
University of Kentucky

Caregiver/Patient Roundtable Discussion & Audience Questions
Roundtable Panelists:
Ramon Robinson & Nicole Owens - Pancreatic Cancer Caregivers
Verna Jackson - Pancreatic Cancer Patient
Rashaunda Shaw - Pancreatitis Caregiver
Jennifer Jones - Pancreatitis Patient

Topics to be discussed:
- Shared experiences (signs and symptoms of pancreas disease)
- Pancreas disease resources
- Importance of talking about family medical history (and how to do this)
- How can we empower the Black/African American community to speak about illness?
- How can friends and family help support the patient and caregiver?
- What does self-care for the caregiver look like?
- Advocacy work

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Chronic disease not only affects an individual’s physical health but can take a toll on one’s mental health. Searching for a diagnosis, going through treatment, trying to manage pain, and the socioeconomic strain of care can all have a significant impact on one’s stress levels and mental well- being. Mental Health America has partnered with the National Pancreas Foundation to further explore this connection in order to better understand, address, and educate on the impacts chronic disease can have on one’s mental health.

In this webinar, we will hear from professionals working within various areas of chronic disease on the connection to mental health that they have seen or studied. We will also hear from an individual with lived experience on how their diagnosis has impacted their life.

*Gain knowledge from experts on the connection between chronic disease, quality of life, and mental health
*Explore how different chronic diseases impact the mental health of those living with the disease and their caregivers
*Hear firsthand from an individual with lived experience about their mental health journey while living with chronic disease

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Moderator: Randall E. Brand, MD
Professor of Medicine
Academic Director, GI Division, UPMC Shadyside
Director, GI Malignancy Early Detection, Diagnosis & Prevention Program
Division of Gastroenterology, Hepatology, and Nutrition
University of Pittsburgh | UPMC

“Medical Overview of the Diagnosis and Management of Adult Pancreatitis”
Dhiraj Yadav, MD, MPH
Professor of Medicine
Co-Director, EMERGE (young investigator mentorship)
Program Director, Advanced Fellowship in Clinical Pancreatology
Division of Gastroenterology, Hepatology and Nutrition
University of Pittsburgh | UPMC

"How the Brain-Gut Connection Can Reduce Pain and Improve Quality of Life”
Eva M. Szigethy, MD, PhD
Professor of Psychiatry, Medicine and Pediatrics
Department of Psychiatry / Division of Gastroenterology, Hepatology and Nutrition
Director, Behavioral Health with the Chief Medical and Scientific Office
Co- Director, Total Care-IBD
Co-Director, UPMC Program for Gut Brain Health (PGH)
University of Pittsburgh | UPMC

Patients Perspective:
Melanie L. Eccles
Dianna M. Born

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PRESENTER:
Rajesh N. Keswani, MD MS
Associate Professor of Medicine
Director of Quality, Digestive Health Center
Director of Endoscopy, Northwestern Memorial Hospital
Northwestern University School of Medicine
Medical Director, National Pancreas Foundation Illinois Chapter

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MODERATOR:
Maisam Abu-El-Haija, MD, MS
Cincinnati Children's Hospital Medical Center

SPEAKERS:
(4:00) "An Overview of Chronic Pancreatitis in Children"
Sohail Z Husain, MD
Stanford University School of Medicine and Stanford Children’s Health
(18:00) "My Stomach Hurts Again...and Again"
Kenneth R. Goldschneider, MD
Cincinnati Children’s Hospital Medical Center
(33:30) "The Pain is Real...How can a Psychologist Help?"
Kristin Loiselle Rich, PhD
Cincinnati Children’s Hospital Medical Center & Department of Pediatrics,

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PRESENTER:
Suhail Sharif, MD
Surgical Oncologist
Associate Professor, TCU/UNTHSC Department of Surgery
Medical Director of Surgical Oncology, Medical City Fort Worth
Medical Director of Surgical Oncology, BASMC
Medical Director of National Pancreas Foundation, North Texas Division

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(6:49) Patient Story, Dakotah Perry, RN

(9:55) Surgery For Pancreatic Cancer: What's Cutting-Edge in 2022 (9:55)
Chee-Chee Stucky, MD,
Assistant Professor, Division of Surgical Oncology & Endocrine Surgery,
Mayo Clinic Arizona

(32:45) Endoscopic Interventions in Pancreatic Cancer: An Overview for The Patient
Toufic Kachaamy, MD, FASGE, AGAF
Interventional Program Specialist, CTCA
Director of Gastroenterology and Endoscopy, CTCA Phoenix

(60:45) Panel Q&A

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Pancreatic cysts are increasingly identified during the course of medical evaluation for a variety of conditions because of improved resolution and increased use of computed tomography (CT), and magnetic resonance imaging (MRI) of the abdomen. These cysts are common and relevant because many of them have potential to become cancer. However, potential and realization are very different and most of these do not progress to cancer where it really matters. The challenge, however, is that we don’t quite know which ones need to be followed and which ones we can ignore. In this session, we will review what is known and unknown and questions and concerns on this topic will be discussed.
Presenter:
Walter G. Park, MD, MS, is an Associate Professor of Medicine at Stanford University, and Medical Director of the Benign Pancreas Program within Stanford Health Care.

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NPF and UCSF Benioff Children's Hospitals Webinar

Supporting Kids and Families Living with Chronic Pancreatitis: It takes a Team!
Emily Perito, MD, MAS, Pediatric Gastroenterologist

Optimizing Growth and Nutrition in Children with Chronic Pancreatitis
Michelle Klosterman, PNP, RD, MSN, Pediatric Nurse Practitioner

Coping with Chronic Pancreatitis: Managing Stressors & Maintaining Function
Dimitra Farmas, LMFT, Marriage and Family Therapist

Patient Perspective

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PANCREATIC CANCER: HOW CAN WE MAKE SOMETHING TREATABLE THAT IS UNTREATABLE? A Multidisciplinary Approach

2:20 - Speaker: Marco Del Chiaro, MD, PhD, FACS
Professor of Surgery
Chief of Surgical Oncology
University of Colorado Anschutz Medical Campus | Department of Surgery

16:44 - Speaker: Wells Messersmith, MD
Professor, Medicine-Medical Oncology
University of Colorado Anschutz Medical

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PRESENTERS:
(2:40) Nutritional Considerations for Patients with Pancreatic Disease
Anna Evans Phillips, MD MS
University of Pittsburgh Medical Center
Assistant Professor of Medicine
Department of Medicine
Division of Gastroenterology, Hepatology, and Nutrition

Pancreatic Disease and Nutrition
(22:50) Katherine Goebel, MS, RD, CSP, CNSC
Clinical Dietitian, Small Bowel Diseases & Nutrition
Pancreatic-Biliary Department
Cedars-Sinai Medical Center

For more info on pancreas disease and nutrition:
https://pancreasfoundation.org/patient-information/nutrition-advice-recipes/

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0:00 Introduction of the NPF Trish O'Neill National Director of Chapter Development - National Pancreas Foundation 4:15 ...

National Pancreas Foundation (NPF)
2021 Virtual Education Series
March 25, 2021
Healthy Approach to Diet & Nutrition for Pancreatic Cancer & Pancreatitis
www.pancreasfoundation.org

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Moderator: Rajesh N. Keswani, MD MS
NPF Illinois Medical Director
Director of Quality and System Integration, Digestive Health Center
Associate Professor of Medicine,
Northwestern University Feinberg School of Medicine

Understanding and Managing Ambiguous Loss in Pancreatic Disease
Sarah Quinton, PsyD
Assistant Professor of Medicine
Director, Behavioral Medicine for Digestive Health
Co-Director, Interdisciplinary Bowel Dysfunction Program

Coping with Emotional and Physical Pain in Pancreatic Disease:
Two Practical Strategies
Kathryn Tomasino, PhD
Assistant Professor of Medicine
Division of Gastroenterology and Hepatology
Northwestern University Feinberg School of Medicine

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Moderator: Chinenye R Dike, MD
Assistant Professor of Pediatrics, University of Nebraska Medical Center
Children's Hospital and Medical Center
Medical director of NPF, Nebraska Chapter

Aliye Uc, MD
Professor of Pediatrics and Radiation Oncology
Division Director, Pediatric Gastroenterology, Hepatology, Pancreatology and Nutrition
Endowed Chair in Pediatric Gastroenterology
Medical Director, National Pancreas Foundation Iowa Chapter
Associate Editor, Pancreatology
Chair, American Board of Pediatrics, Subboard of Pediatric Gastroenterology
Stead Family Department of Pediatrics |University of Iowa Health Care

A. Jay Freeman, MD, MSc
Associate Professor of Pediatrics
Director of Digestive Health for the Emory Children's
Pediatric CF Program
Director Advanced Pancreatic Care Program @ CHOA
Medical Director GA Chapter of the National Pancreas Foundation
Division of Pediatric Gastroenterology, Hepatology, and Nutrition
Emory University School of Medicine
Children's Healthcare of Atlanta
NPF Medical Director- Atlanta Chapter

Tonya Palermo, PhD.
Professor of Anesthesiology, Adj. Pediatrics and Psychiatry, University of Washington
Hughes M. and Katherine Blake Endowed Professorship in Health Psychology
Associate Director, Center for Child Health Behavior and Development, Seattle Children's Research Institute

Cheryl Hartzell, MD
Assistant Professor
Division of Pain Management
Cincinnati Children’s Hospital

Jenny Jamison, RD, Pancreatitis Caregiver

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MODERATOR
Kenneth Lee, MD
Professor of Surgery University of Pittsburgh School of Medicine and UPMC

Featured Speakers:
“Multi-Modality Treatment of Pancreatic Cancer” 0:08:38
Amer H. Zureikat, MD
Associate Professor of Surgery, University of Pittsburgh School of Medicine
UPMC Chair of Clinical Surgery, Department of Surgery, Department of Surgery University of Pittsburgh School of Medicine

“Advances in Surgical Techniques and Robotics” 0:43:39
Alessandro Paniccia, MD
Assistant Professor of Surgery University of Pittsburgh School of Medicine
Patient Perspectives

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INTRODUCTION/MODERATOR
A. Jay Freeman, MD, MSc
Emory University School of Medicine

PANCREATIC CANCER IN UNDERSERVED COMMUNITIES - 9:00
KMarie King MD, MS, MBA, FACS
Albany Medical Center – New York

CREATION AND IMPLEMENTATION OF PATIENT LED PANCREAS CANCER EDUCATION - 26:29
Andrew Page, MD, FACS
Piedmont Healthcare

WHAT TO EXPECT AFTER SURGERY FOR PANCREATIC CANCER - 41:45
Jessica Lyn Cioffi, MD
Piedmont Healthcare

PARTICIPATING IN CLINICAL TRIALS FOR PANCREATIC CANCER
NEW STRATEGIES IN PANCREATIC CANCER TRIALS - 1:07:00
Mehmet Akce, MD
Department of Hematology and Medical Oncology
Winship Cancer Institute of Emory University

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Speakers:
• Elissa Downs, Pediatric Gastroenterologist: "Managing Nutrition and GI After TPIAT" (00:3:56)
• Melena Bellin, Pediatric Endocrinologist: "Diabetes After TPIAT" (00:25:16)

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Speakers:
• Karys Dunham
• Rose Gefteas
• Cecilia Petricone
• Seth Rodivich

The National Pancreas Foundation & University of Minnesota Medical Center

Moderators:
• Melena Bellin, MD
• Elissa Downs, MD
• Cecilia Petricone

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